I am a painter using my art to work with difficult subjects. I created the A Graceful Death project and exhibition of portraits and words from the end of life from 2007 until 2016, when both my sons' addictions became unmanageable. I created the Addicts And Those Who Love Them exhibition, portraits and words from addictions, to try to understand them. Both sons died from their addictions and suicide and now I am working on an exhibition, Beloved, bringing addiction deaths into the light.
Monday, 26 October 2020
God's Study. A glimpse, through a painting, into where God does all his admin. No religions needed, just a sense of humour.
Monday, 5 October 2020
Total acts of grace from the dying. Gifts from the end of life.
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"Winnie." I painted this for the A Graceful Death exhibition, portraits and words from the end of life. Here, the carer on the right is training the carer on the left to sit with Winnie, who is dying |
There are, sometimes, magic moments during the dying of someone you care for. We hear of people very near to death talking to invisible beings, telling them to wait, they are just getting ready. There are reports of people seeing family and friends long dead, coming to visit them, and it all seems perfectly normal. Over the last few years, I have begun to notice small but significant acts of grace during the dying of someone with whom I am, or have become, close. I call them acts of grace but I want to call them acts of love, even though there is no proof at all that they were. These small gifts have given me immense joy, and sometimes, I have been affected by the power of them for a long time afterwards. Even now, recalling them, I feel my spirits lift. Here are three of these moments of grace, these glimpses into something beyond time.
Dominic and the angels.
I painted Dom for the A Graceful Death
Exhibition. Shown here with his boule
of chemotherapy drugs that he had to carry
with him
I sat with my youngest brother all night, the day before he died. Father Dominic, my brother, was a Catholic priest. In his early fifties, the youngest of four of us, it seemed the natural order of things was being upended, and that he was leaving us far too soon.
I woke in the early hours one morning, on my bed in his hospice room, remembering this deep dark time in the middle of the night had been the most difficult for Dom. He had spoken of the difficulties the night had brought him when we talked before he arrived at the hospice. So I went in my pyjamas to sit beside him. There was only a small light in the corner of the room, outside it was dark and silent and I prepared myself for a long wait with him. Taking Dominic's hand in mine, I sat and watched him sleep. He had drifted into that deep state of unconsciousness that precedes death, and I did not know where he really was. Suddenly, I felt the room fill with joy. I felt something change in the atmosphere around me, and I thought - there are angels here. I felt intense love, almost tangible, but invisible, swirling in the air around us and I looked around to see where this extraordinary joy was coming from. It felt like someone was pumping pure love into the room through the air conditioning, but I knew that made no sense, and I could not work out where it was coming from. And then, I looked at Dom and knew that he was doing this. It is you, Dom, I said. You are doing this! And as the light began to change outside, and the angels, if that was what it was, were fading, Dominic took my hand in his and kissed it. Dominic died hours later just after midday, when I had left the room for a few minutes. But he had let me know his angels, and allowed me into his love.
Margaret and her smile.
I loved Margaret. I had been asked to support her for her final journey, neither of us knowing whether I would be needed for the whole of it. As it turned out, I did stay, and Margaret in her nineties and I in my fifties then, became great friends. She was a modest, shy, intelligent lady. She had taught maths and music, before marrying into the church and becoming a vicar's wife and later, a mother. Margaret was tiny. She spoke with a strong Northern accent, and I visited her every week until near the end, when I found a way to be with her every second day. She had no visitors but her excellent son and his wife, and me. I loved being with her, and she loved being with me. We would tell each other we were so lucky to have met.
Later, as Margaret drifted into the last stage of disconnection from the world, I would sit with her and keep her company. One Sunday I had a compulsion to go and see her. I ought not, I thought, she isn't expecting me. But I found myself in my car driving to the home where she lived. I really ought not, I thought as I let myself in and climbed the stairs to her room. She lay in the bed in her little room, the sides up now, and breathed heavily and noisily. I wondered why I had needed to come, but I sat down anyway and told her I was here, and that all was well.
Nothing happened, so after a while I prepared to leave. Saying goodbye, I stopped at the door and I do not know what made me go back to see her again. Leaning over the sides of her bed to say a proper goodbye, her tiny head with white hair on the pillow, mouth open, and breath coming noisily and sharp from her throat, I told her that she was my dearest friend. And then, Margaret opened her eyes, and looking into mine gave me the most beautiful smile that I have ever seen. The smile filled me with joy, with love, and with utter astonishment. It seemed to radiate light and I remember laughing and saying out loud that all was fine, it is all OK now, I know she is fine and I am so so so happy! I was so happy. I was elated. It was the most wonderful gift. I laughed all the rest of that day, and into the next. The next day she died, and when I went to see her for the last time, I put fresh lavender on her pillow and thanked her, still laughing for joy. Her final gift of grace had been to show me a glimpse of Heaven in a smile that shone with light and love.
Anne and the look.
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I painted this of Anne last year, requested by my cousin Jemima, before Anne became ill. Since this photo was taken, I have painted forget-me-not flowers in Anne's hands. |
A few days ago, my Aunt Anne died. The last of my mother's sisters to go, it is the end of an era. Anne, her sisters Maureen (my mother), and Kit, looked more and more like each other as they grew older. Anne had begun to look so like my mother that I took huge comfort from it, and though they were very different in character, my mother and Kit and Anne shared such a history. My Aunt Anne was precious to us all, the youngest of the sisters, they had had four brothers and now, after Anne's death, there are only two brothers left. Five of the seven siblings have gone.
I visited my aunt twice during her final weeks. She was lovingly cared for by two of her own six children, and wanted for nothing. I did not know Anne as well as I had known my mother and Kit. I wanted to know something of the real person before she died, and so I went to see her and my cousins Maddy and Min. I sat alone with Anne for a little while on the second visit, talking about her life, longing to know her more and understanding that perhaps, I could not. There was a silence, Anne was looking down at her hands resting in front of her as she lay propped up in her bed. Then she looked up and into my eyes and the power of the look was like an electric charge. For a few seconds she shared something so deep and profound, so wonderful and so personal, that my only thought was that she was seeing me. She was seeing my soul, she was completely and utterly seeing me. I felt understood, affirmed, reassured. So instead of my understanding Anne before she died, Anne understood me. It left me full of peace and awe, and I knew it was her goodbye. There was nothing more for me to do, no more visits needed, Anne had seen into my soul, and had send me away with love. She died a week or so later.
What does it all mean?
This, I do not know. The experiences are simply that, experiences and leave no physical proof behind that they occurred. Because they happened to me and no one else - except the dying person who then died and cannot be asked about it - there is only my word for it. I am speaking of my own experiences, setting them in context and describing the effect they had on me.
Here is where they become meaningful. These experiences were not expected. They were surrounded by powerful feelings of love and connection that did not come from me. If I am able to create these experiences myself, I am a very lucky person and wish I knew how I did it. In the moment of each one of the above accounts I was, for a short while, beyond myself. It was like a light exploding in my mind and heart, there was connection beyond my five senses and there was an understanding of it being absolutely, and perfectly, for me. I did not understand these experiences so much as feel them and know them. I knew what they were as they happened. My response to each was joy, tears, gratitude, laughter. I did not question them, worry about them, analyse them, or dismiss them. Each experience was so wonderful, I left knowing everything was perfect. With two of them, Margaret and Anne, I did not need to go back to see them again. They were on their way and did not need me, and made it clear that what they were doing, where they were going, was far beyond me and my small offerings here. I was given a glimpse of perfect love and perfect understanding, and allowed to go on my way. They then went on their way, and died. I like to think they were surrounded constantly by the love, connection and joy that they allowed me to experience in the teeniest of ways in a microcosm of a second, and that that is what is awaiting us all.
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With thanks to my dear friend Claire for the Angels Gather Here sign. |
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Saturday, 19 September 2020
Heaven is laughing
Sunday, 6 September 2020
All I wanted was to be fabulous. That's all.
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Me aged three |
It is all I ever wanted from life. From the earliest days, I understood that I was a fairy. Being a fairy was not something I aspired to. I was one. I, Antonia Rolls, aged about three, was just like Tinkerbell. You could not tell us apart. There was something so right about being a fairy, with a fairy's right to wear anything that glittered and do whatever she wanted. My aunt had some spare material from a dress she had made for herself, a deep turquoise nylon with silver glitter threaded through it. I wrapped myself in this and at five years old, I knew I was magnificent. I drew pictures of fairies with wings and tutus on all my books, on the walls of my bedroom and wherever I could get away with it. It was my world. I believed in the magic, the beauty, and the wonder of fairies; no wonder I decided to be one. If, of course, I did decide. At the time, I had no doubt that I had been born one.
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The real thing |
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The Cyrenians on a very good day |
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Not a fairy so much as a witch living in a bicycle shed |
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Probably all of you reading this blog |
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Fabulous. |
Saturday, 22 August 2020
Today is my wedding anniversary
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Mr and Mrs Bedford |
Today is my wedding anniversary. Four years ago today, I married Mr Bedford in a hospital side room, and became Mrs Bedford. It was a hot, sunny day, all our families crowded into the hospital room in their best clothes and though there was much light and joy, it was also the saddest day. The groom, Mr Bedford, had six weeks and one day left to live. We knew he did not have long, but none of us really thought it would be so soon; we must have guessed deep inside though, because of the haste in which we arranged the wedding. The side room in the hospital was transformed with balloons, an afternoon tea with bone china and dainty cakes, and bunting. The tiny room had to double up as a registry office and party venue and so I made my vows to dear Mr Bedford with my eye on a lavish cream tea just feet away. It is common knowledge that I love cream teas. That is why his family, my new in laws, provided it.
Mr Bedford and I had been together for over eight years. We thought often about getting married, but never quite got round to it, we somehow managed to evade the seriousness of it. Of course, we knew we would end up married but every time we tried to think about it, one or other of us decided we needed more time. Life was full enough as it was, without weddings to think of. I would have been his third wife, and he would have been my second husband. We had done it all before, it did not seem terribly urgent. And, of course, we used to argue like mad. Are we right for each other? we would think after we had disagreed about the millionth thing that day. Is this the right person for me? But there was a bond of deep friendship that could not be overlooked. Our arguments were always resolved, mostly because Mr Bedford had the courage to address difficulties and insist we talk them over. I liked to flounce and sulk, which was water off a duck's back to Mr B. Tell me how you are feeling, he would say, and I learned that it was safe to do so. Tell me the truth, said Mr Bedford, and I found that he respected my opinion, and took me seriously if I told him whatever truth I had, even if it was hard to hear. Mr B was a proper grown up. No amount of pretending I was fine when I was not would fool him. I learned that it was safe to speak my truth, and that of all people in the world, Mr B would respect it. Even if he did not like it, he would respect it, as long as it was the truth.
We were exact opposites to each other, we were so very different that when we could not agree on something, it was like talking to someone from another planet. But when we were in harmony, due to our deep underlying friendship, we were unstoppable. He was a detail man. He liked to read the small print, and he was forensic in his thinking and analysis. He needed to be, he wrote serious case reviews on some dreadful child abuse cases, and his detective skills, his interview techniques, and his ability to research, remember and apply the law was astonishing. I on the other hand, am a fairy. I live in a world of imagination, creativity and instinct. I made plans as I went along, I took risks and did not care about rules. I was extroverted, he was introverted. I looked up at the sky, marvelling at the clouds and space, and he looked down, fascinated by the detail of the stones and pebbles on the path ahead. We would take each other by the hand and show each other our worlds. Look! he would say, at this fascinating detail here on this path, look at all the millions of things to study. I would point up to the sky. Look! I would say, at all the space up here, the stars and the clouds, look at all the magic.
When Mr Bedford became ill, he was stoic. He had been an NHS man for most of his career, he managed hospitals, he was a trouble shooter when things went wrong, he became a specialist in managing super bugs in hospitals, and spent time trying to improve waiting times in A and E departments all over the country. But when his health began to deteriorate, no one picked up the symptoms. It's your heart! They said, and in fact, it was stage four cancer. It was picked up in hospital almost by accident. Mr Bedford, the NHS man, did not fight. He took his diagnosis on the chin, so to speak, and began to put his affairs in order. Part of this was to propose to me.
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The tennis champ, refusing to give in. |
We went on a tennis holiday just after he knew he had cancer, or rather, I joined him on his tennis holiday because he was beginning to struggle with his energy. As a dedicated tennis player, he needed to be on the court, as one of the team, and to not give in. His colleagues cheered him on every time he got up to play, and he displayed his iron will in not letting the exhaustion stop him. He was a star, they all loved him. But back in the hotel room, his face grey with the effort, his legs giving way, he lay down and slept where no one could see the toll it was taking. But he would not give up. I loved him very much on that holiday. He was so brave. He did not complain once.
Alan had cancer. By the time it was discovered, it was too late. He tried chemo but it made him so ill that they would not continue. His decline was very fast. Then, on the 18th of August 2016, from his hospital bed on the ward attached to drips and lines and tubes, after a gruelling operation that did not entirely work, he proposed. Marry me, he said. Of course! I said, and we burst out laughing together, all our differences forgotten and the giddy joy of having finally agreed to get married making us giggle and hold hands. It is the only time I saw Mr B looking bashful.
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The bashful Mr B. Engaged at last. |
Alan's delightful family took over from here. Somehow, they made a side room in the hospital into a paradise of colours and festivities. They organised the whole thing, while I rushed off to arrange the fastest appointment I could with the registry office. We arranged to be married in three days time. August the 22, at the hospital. Yes, the registrar said, we have done urgent weddings at the bedside before, we will be there and all will be well. I found wedding rings, but had to buy a chain for Alan's ring as his hands and fingers were so large, nothing would fit and we could not wait to order a special wedding ring. So, he wore his wedding ring on a chain around his neck. On the day he died, I took it from his neck and wore it myself for months. We both knew I would do that.
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The wedding tea |
Oh, on the day, on our wedding day, Alan's brother David got him dressed in the ward with the curtains around the bed. Everyone on this and the surrounding wards knew he was getting married, it was almost heartbreaking. They were so happy for him. Alan wanted to wear a smart shirt and trousers. Control and dignity were important to him. He wanted to walk into the room, but could barely stand, and so had to accept a wheelchair. His iron will could no longer keep his body in check. I tried to wheel him into the wedding room, thinking it would make a brilliant entrance, but I couldn't control the chair. I kept wheeling him off at right angles into the wall. This annoyed him and we nearly had one of our arguments, but I could not deny that it wasn't very dignified to have him wheeled in backwards with plaster all over his smart clothes. He asked for me to get a nurse, he didn't want us lurching into the room like drunks, and so a nurse wheeled him in gracefully and everyone cheered. After we said our vows, he could not keep himself upright in the chair, and was wheeled back to his bed, a married man, while we all stayed and had the cream tea. Mr Bedford found it hard to keep his head raised and his eyes open when we said our vows. "Look at me!" I said to him, "I will not marry a man who cannot look at me!" and so he did. He gave one of his little private smiles, and I knew he loved it.
Later, when everyone had gone home, and I had dropped guests off at the station to get their trains, I went back to his bedside, where I spent the rest of the afternoon in my best dress sitting beside my new husband as he lay motionless and exhausted, holding his hand. The sun was shining, the balloons and bunting were removed and my new wonderful in laws quietly took everything away so that I did not have to. I was deeply happy that day, I had married my Mr B, I was Mrs B, and I had gained his family, his most excellent family, as mine too. I had in laws to boast about, I had a husband to love and to be proud of, and I had a job to do. The job, we both knew, was to see him out of this life, and to go with him as far as I could, with his brother David and his son Chris. But that was not today, that was not on the agenda on the 22 August 2016. That day was my wedding day.
Six weeks and one day later, on the 23 October 2016, his brother, his son and I held him as he died. Mr Alan Bedford and I, Mrs Antonia Bedford, had had six weeks and one day of a perfect marriage.
Happy Anniversary Mr B. Love from Mrs B.
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The wedding afternoon, holding my new husband's hand. |
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Monday, 10 August 2020
You're going to die.
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Some older zombies |
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Probably don't take this risk |
- vulnerable because of her cancer long ago, and the complications that are part of her life now
- working with people who are going to die in the hospice, some of whom are old
- old herself.
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I am celebrating my birthday this year with a reggae disco in my garden. I will be dancing to the Jolly Boys here, the oldest reggae band in the world. |
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Tuesday, 28 July 2020
On not conforming, being creative and needing a platform.
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Being creative and needing a platform. And not conforming because I booked this theatre slot before I had written the show. Doing it all backwards. |
A few years ago I narrowed down my whole personality to three points. They are
- I do not conform
- I am creative
- I need a platform.
- I am a teeny bit rebellious.
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Me as a fairy. |
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Speaking at an end of life conference. Sounds like none of us left the building after the conference, doesn't it? |
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Not my actual grandmother but same approach to life. |